Archive for July, 2008

Endoscopy Results!!

Thursday, July 31st, 2008

I just put the endoscopy results up.  Look under “Pages” on the right side of my blog.  Click on “**Endoscopy Results!!!”  I will have the pill cam results at the end of August.  Stay tuned.

**UPDATE II:  If you click on the pictures (there are three), the text is more readable.  Thanks Petra for pointing that out – I tend to be a bit slow when it comes to computers (I leave the complicated stuff, which means everything except typing, to Charlie!) ;-)

**UPDATE: IT HAS BEEN BROUGHT TO MY ATTENTION THAT THE TEXT ON THE ENDOSCOPY REPORTS IS BLURY. I WILL FIX THAT TOMORROW. I WANT YOU ALL TO BE ABLE TO READ THE REPORTS CLEARLY. I HOPE YOU UNDERSTAND THE IMPORTANCE OF THESE RESULTS – THE IMPLICATIONS, THE TRAGEDY, THE NEEDLESS SUFFERING, ALL OF IT.  SOMETHING HAS TO CHANGE.  OUR KIDS SHOULD NOT BE INJECTED WITH TOXINS UNTIL THEIR INSIDES LOOK LIKE MY SON’S DO… OR WORSE… THERE IS MUCH WORSE OUT THERE, TRUST ME.

A Few Funny Stories From Our Thoughtful House Trip:

Thursday, July 31st, 2008

Well, we made it home.  The trip back was a long one, but was almost bearable considering we were headed back to our own beds (and toilets).  If someone asked me what I dislike most about traveling (by car), I would have to say public restrooms.  Dear God and everything that is Holy, those things are NASTY!  We used to do the trick of stopping someplace like Cracker Barrel, under the assumption that because they are a very busy restaurant-type place the bathrooms would be cleaned on a regular basis. (more…)

More Reason To Be Angry With The Pediatricians…

Tuesday, July 29th, 2008

Stunning news after Charlie’s procedures.  According to the evidence gathered from the upper and lower scopes, Charlie has damage in every single organ of his GI system.  If you can think of an “itis” from mouth to anus, he’s got it.  Like I said, stunning.  I didn’t expect so much.

Dr. K says this explains the diarrhea, abdominal pain, and distended belly.  These are not new symptoms. My son has suffered from these problems since just around 2 years old.  It makes me angry to think that not one doctor, and there have been many, suggested we see a GI specialist.  Not one.  Until Dr. Davis.  Thank you Dr. D!  It makes me sad that I just didn’t know any better.  Hence why I blog. (more…)

The Curse of the Unflushable Toilet and Meeting The Good Doctors

Monday, July 28th, 2008

Mike and I hardly ever travel.  I can count the number of times we’ve stayed in hotels together on one hand. There just hasn’t been time.  In the last 9 months we’ve traveled more than we have in the past three years.  Something we’ve both noticed is the fact that hotels have serious plumbing issues… toilets that don’t flush (I think this has happened to us at every single hotel we’ve stayed in), sinks that don’t drain, and showers where you’re standing in 8 inches (or more) of water.  This isn’t something that only happens at “affordable” hotels, we’ve had this experience at a Ritz (ATL).  Before you go thinking we’re rolling in dough, Mike’s mom works for the Ritz so we were able to get an affordable room (and that was 3 or 4 years ago). (more…)

The Flu Vaccine

Saturday, July 26th, 2008

As you probably heard, I took my teenage daughter to her pediatrician last week for a sports physical.  The office had vaccine notices hanging on every wall: their official vaccine policy, flu vaccine notices, vaccine “safety” information (which I once defaced (more…)

Doh!

Friday, July 25th, 2008

To Texas We Go

Thursday, July 24th, 2008

The picture you see of the blue Buddha (called The Medicine Buddha) is for Charlie (and every other child affected by ASDs).  His blue hues and rays shine onto and into the physical, psychological and emotional bodies for good health and well being.

Having said that…

We leave Sunday morning for Austin.  Everything is all set.  I’m nervous, excited, apprehensive, hopeful, and so many more emotions…  doing my best to channel calmness and positive energy.  Charlie is, of course, climbing the walls with excitement over a road trip – the kid loves to travel (he’d live in a hotel if he could). (more…)

Kim-Bear Bobbit

Tuesday, July 22nd, 2008

Kim Stagliano put a piece up on HuffPo regarding a big giant wiener… okay, it’s not really about a “wiener,” but the ignoramus Michael WEINER Savage and his moronic comments about kids with autism.

As I was reading the piece I kept thinking, “Damn, Kim’s like an angry Mama Bear protecting her cubs!”

You should definitely head over to The Huffington Post immediately and read the piece… leave a comment while you’re there to support Kim-Bear! ;-)

P.S.  When you’re done reading Kim’s piece and letting her know how great she is, come back here and answer this question for me:  Don’t you just love her?!?

P.P.S.  The first (and only) time I saw Kim in person, she was wearing these oh-so-80′s white shades (hense why I put shades on the bear).

From Age of Autism: Dr. Poling and An Angry Mom

Tuesday, July 22nd, 2008

There are two new posts up on Age of Autism this morning.  THIS one and THIS one.  Please hop over and read them ASAP, they are fantastic.

Angela Warner Being *Cheeky*, or As Long As Your Asses Are Comfy, We’re Happy…

Monday, July 21st, 2008

The following article was reprinted on CharlieInWonderland.com with permission from AutismSalutes.com:

Monday, July 21, 2008
The Air Force and GWOT; An Egregious Failure of Leadership

Friday, July 15, 2008 was like any other morning. I got up, turned on my pc, fixed my coffee, and sat down to check out what was happening in the world. My typical morning of checking my email and catching up on the news while rubbing the sleep out of my eyes was quickly transformed. I checked my email to find an article sent to me by a fellow Air Force spouse on the east coast. As I read the article, I found myself instantly wide awake and shaking from head to toe with complete disbelief and outrage! It really takes the extreme to anger me to the point that I am shaking from head to toe. This was not just any article. (more…)